-
01
Developing and diversifying respite structures
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02
Consolidating rights and training for carers
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03
Improving health monitoring for family carers
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04
Quality labelling throughout the country for "single points of contact", the "Maisons pour l’Autonomie et l’Intégration des malades Alzheimer" (MAIA)
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05
Establishing "coordinators" throughout the country
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06
Reinforcing support at home, advocating services by trained staff
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07
Improving support at home using new technologies
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08
Preparing and implementing a system for giving the diagnosis and providing counselling
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09
Experimenting new payment terms for health professionals
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10
Creating an Alzheimer’s disease information card for each patient
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11
Creating memory units in areas that are not covered
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12
Creating "memory resource and research centres" in areas that are not covered
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13
Reinforcing the very active memory units
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14
Monitoring drug-related iatrogenic accidents
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15
Improving correct use of drugs
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16
Creating specific units for patients suffering from behavioural problems within EHPADs
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17
Creating specialized units within health care rehabilitation and follow-up (SSR) departments for Alzheimer’s patients
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18
Accommodation for young patients
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19
Identifying a national reference centre for young Alzheimer’s patients
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20
A specific career and skills development plan for Alzheimer’s disease
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21
Creating a foundation for scientific cooperation to stimulate and coordinate scientific research
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22
Developing clinical research of Alzheimer’s disease and improving evaluation of non-drug therapies
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23
Doctoral and post-doctoral grants
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24
New assistant surgeon and hospital teaching assistant positions
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25
Research in human and social sciences
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26
Support for research groups working on innovative approaches
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27
Support for methodological research groups in human and social sciences
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28
Creation of a body of research in automatic image processing
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29
Studying large patient populations (cohorts) with long-term monitoring
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30
High-speed genotyping
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31
Exploiting the genome sequencing of the microcebe
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32
Training in clinical epidemiology
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33
Developing links between public research and industry
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34
Setting up epidemiological surveillance and follow up
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35
Setting up a telephone helpline and a website for information and local advice
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36
Holding regional conferences to support the implementation of the plan
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37
Studying disease knowledge and attitudes
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38
Creating a space for ethical thought about Alzheimer’s disease
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39
Launching a discussion about the legal status of Alzheimer’s patients in institutions
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40
Organising regular meetings focusing on the autonomy of people suffering from Alzheimer’s disease
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41
Informing patients and their families about trials implemented in France
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42
Making the fight against Alzheimer’s disease a priority for the European Union during the French presidency
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43
Publicizing and promoting research across Europe
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44
Holding a European conference in autumn 2008
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45
Studying opinion and attitude about Alzheimer’s disease and the impact of the plan among patients and carers
Measure n°34Version française
Setting up epidemiological surveillance and follow upTo enable specialist memory care provision be adapted through regional care organisation schemes and the quality of their operation be evaluated. To obtain epidemiological data and activity data for specialist centres.
Measure
Description of the measure Production of specifications defining the data to be collected. Computerising memory units and volunteer independent neurologists.
Implementation details
Drafting of the content by a working group. Call for tender open to existing CMRRs to implement this measure and create a national database
Lead supervision : the Hospitalisation And Care Organisation Department (Direction de l’hospitalisation et de l’organisation des soins, DHOS)
Partners : CHU Nice, The French Pharmaceutical Companies Association (les entreprises du médicament, LEEM)
Content to be drafted by March 2008. Call for projects in June 2008
Funding amount
Creating and rolling out the system, training doctors, purchasing software €0.8 million
Managing the database: €0.3 million/year
Sources of funding
Health insurance system (ONDAM - health establishments - MIGAC)
Computerised case management in 50% of centres by 2009, 100% by 2010 - Activity data and epidemiological data
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