Measure n°22 - Plan Alzheimer 2008

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Measures

01

Developing and diversifying respite structures
02

Consolidating rights and training for carers
03

Improving health monitoring for family carers
04

Quality labelling throughout the country for "single points of contact", the "Maisons pour l’Autonomie et l’Intégration des malades Alzheimer" (MAIA)
05

Establishing "coordinators" throughout the country
06

Reinforcing support at home, advocating services by trained staff
07

Improving support at home using new technologies
08

Preparing and implementing a system for giving the diagnosis and providing counselling
09

Experimenting new payment terms for health professionals
10

Creating an Alzheimer’s disease information card for each patient
11

Creating memory units in areas that are not covered
12

Creating "memory resource and research centres" in areas that are not covered
13

Reinforcing the very active memory units
14

Monitoring drug-related iatrogenic accidents
15

Improving correct use of drugs
16

Creating specific units for patients suffering from behavioural problems within EHPADs
17

Creating specialized units within health care rehabilitation and follow-up (SSR) departments for Alzheimer’s patients
18

Accommodation for young patients
19

Identifying a national reference centre for young Alzheimer’s patients
20

A specific career and skills development plan for Alzheimer’s disease
21

Creating a foundation for scientific cooperation to stimulate and coordinate scientific research
22

Developing clinical research of Alzheimer’s disease and improving evaluation of non-drug therapies
23

Doctoral and post-doctoral grants
24

New assistant surgeon and hospital teaching assistant positions
25

Research in human and social sciences
26

Support for research groups working on innovative approaches
27

Support for methodological research groups in human and social sciences
28

Creation of a body of research in automatic image processing
29

Studying large patient populations (cohorts) with long-term monitoring
30

High-speed genotyping
31

Exploiting the genome sequencing of the microcebe
32

Training in clinical epidemiology
33

Developing links between public research and industry
34

Setting up epidemiological surveillance and follow up
35

Setting up a telephone helpline and a website for information and local advice
36

Holding regional conferences to support the implementation of the plan
37

Studying disease knowledge and attitudes
38

Creating a space for ethical thought about Alzheimer’s disease
39

Launching a discussion about the legal status of Alzheimer’s patients in institutions
40

Organising regular meetings focusing on the autonomy of people suffering from Alzheimer’s disease
41

Informing patients and their families about trials implemented in France
42

Making the fight against Alzheimer’s disease a priority for the European Union during the French presidency
43

Publicizing and promoting research across Europe
44

Holding a European conference in autumn 2008
45

Studying opinion and attitude about Alzheimer’s disease and the impact of the plan among patients and carers

Accueil > 44 measures > Measure n°22

Measure n°22Version française

Developing clinical research of Alzheimer’s disease and improving evaluation of non-drug therapies

To support the research activities of hospital teams by significantly increasing resources for the hospital clinical research programme (PHRC).
Every year, through a call for tender, the PHRC develops clinical research on priority subjects in health establishments. The development of the research effort into Alzheimer’s and related diseases, and particularly the clinical research effort, is crucial to the success of the plan. Increasing the PHRC budget will support clinical research in hospitals into the disease.
The projects presented by hospital teams for the PHRC may cover subjects such as adapting diagnostic and therapeutic strategies in the treatment of Alzheimer’s and related diseases or the quality of care and the quality of life of patients and carers.
The projects must also involve non-drug therapies, which must be better known and better evaluated.

Context and issues

Clinical research into Alzheimer’s disease, whose mechanisms are still only partially known, must be amplified considerably.

Measure

Description of the measure
Placing Alzheimer’s disease (and related diseases) at the heart of the PHRC’s priorities from 2008 to 2012 inclusive, with a significant increase in the programme’s budget.

Implementation details
The PHRC call for projects is issued every year in a ministerial circular.
After a selection process involving the foundation for scientific cooperation, the health establishments concerned are informed of the research projects chosen by the health ministry and the credits to be allocated for their funding.

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