Developing and diversifying respite structures
Consolidating rights and training for carers
Improving health monitoring for family carers
Quality labelling throughout the country for "single points of contact", the "Maisons pour l’Autonomie et l’Intégration des malades Alzheimer" (MAIA)
Establishing "coordinators" throughout the country
Reinforcing support at home, advocating services by trained staff
Improving support at home using new technologies
Preparing and implementing a system for giving the diagnosis and providing counselling
Experimenting new payment terms for health professionals
Creating an Alzheimer’s disease information card for each patient
Creating memory units in areas that are not covered
Creating "memory resource and research centres" in areas that are not covered
Reinforcing the very active memory units
Monitoring drug-related iatrogenic accidents
Improving correct use of drugs
Creating specific units for patients suffering from behavioural problems within EHPADs
Creating specialized units within health care rehabilitation and follow-up (SSR) departments for Alzheimer’s patients
Accommodation for young patients
Identifying a national reference centre for young Alzheimer’s patients
A specific career and skills development plan for Alzheimer’s disease
Creating a foundation for scientific cooperation to stimulate and coordinate scientific research
Developing clinical research of Alzheimer’s disease and improving evaluation of non-drug therapies
Doctoral and post-doctoral grants
New assistant surgeon and hospital teaching assistant positions
Research in human and social sciences
Support for research groups working on innovative approaches
Support for methodological research groups in human and social sciences
Creation of a body of research in automatic image processing
Studying large patient populations (cohorts) with long-term monitoring
Exploiting the genome sequencing of the microcebe
Training in clinical epidemiology
Developing links between public research and industry
Setting up epidemiological surveillance and follow up
Setting up a telephone helpline and a website for information and local advice
Holding regional conferences to support the implementation of the plan
Studying disease knowledge and attitudes
Creating a space for ethical thought about Alzheimer’s disease
Launching a discussion about the legal status of Alzheimer’s patients in institutions
Organising regular meetings focusing on the autonomy of people suffering from Alzheimer’s disease
Informing patients and their families about trials implemented in France
Making the fight against Alzheimer’s disease a priority for the European Union during the French presidency
Publicizing and promoting research across Europe
Holding a European conference in autumn 2008
Studying opinion and attitude about Alzheimer’s disease and the impact of the plan among patients and carers
To support the research activities of hospital teams by significantly increasing resources for the hospital clinical research programme (PHRC).
Every year, through a call for tender, the PHRC develops clinical research on priority subjects in health establishments. The development of the research effort into Alzheimer’s and related diseases, and particularly the clinical research effort, is crucial to the success of the plan. Increasing the PHRC budget will support clinical research in hospitals into the disease.
The projects presented by hospital teams for the PHRC may cover subjects such as adapting diagnostic and therapeutic strategies in the treatment of Alzheimer’s and related diseases or the quality of care and the quality of life of patients and carers.
The projects must also involve non-drug therapies, which must be better known and better evaluated.
Clinical research into Alzheimer’s disease, whose mechanisms are still only partially known, must be amplified considerably.
Description of the measure
Placing Alzheimer’s disease (and related diseases) at the heart of the PHRC’s priorities from 2008 to 2012 inclusive, with a significant increase in the programme’s budget.
The PHRC call for projects is issued every year in a ministerial circular.
After a selection process involving the foundation for scientific cooperation, the health establishments concerned are informed of the research projects chosen by the health ministry and the credits to be allocated for their funding.