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01
Developing and diversifying respite structures
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02
Consolidating rights and training for carers
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03
Improving health monitoring for family carers
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04
Quality labelling throughout the country for "single points of contact", the "Maisons pour l’Autonomie et l’Intégration des malades Alzheimer" (MAIA)
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05
Establishing "coordinators" throughout the country
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06
Reinforcing support at home, advocating services by trained staff
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07
Improving support at home using new technologies
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08
Preparing and implementing a system for giving the diagnosis and providing counselling
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09
Experimenting new payment terms for health professionals
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10
Creating an Alzheimer’s disease information card for each patient
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11
Creating memory units in areas that are not covered
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12
Creating "memory resource and research centres" in areas that are not covered
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13
Reinforcing the very active memory units
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14
Monitoring drug-related iatrogenic accidents
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15
Improving correct use of drugs
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16
Creating specific units for patients suffering from behavioural problems within EHPADs
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17
Creating specialized units within health care rehabilitation and follow-up (SSR) departments for Alzheimer’s patients
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18
Accommodation for young patients
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19
Identifying a national reference centre for young Alzheimer’s patients
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20
A specific career and skills development plan for Alzheimer’s disease
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21
Creating a foundation for scientific cooperation to stimulate and coordinate scientific research
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22
Developing clinical research of Alzheimer’s disease and improving evaluation of non-drug therapies
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23
Doctoral and post-doctoral grants
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24
New assistant surgeon and hospital teaching assistant positions
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25
Research in human and social sciences
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26
Support for research groups working on innovative approaches
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27
Support for methodological research groups in human and social sciences
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28
Creation of a body of research in automatic image processing
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29
Studying large patient populations (cohorts) with long-term monitoring
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30
High-speed genotyping
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31
Exploiting the genome sequencing of the microcebe
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32
Training in clinical epidemiology
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33
Developing links between public research and industry
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34
Setting up epidemiological surveillance and follow up
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35
Setting up a telephone helpline and a website for information and local advice
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36
Holding regional conferences to support the implementation of the plan
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37
Studying disease knowledge and attitudes
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38
Creating a space for ethical thought about Alzheimer’s disease
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39
Launching a discussion about the legal status of Alzheimer’s patients in institutions
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40
Organising regular meetings focusing on the autonomy of people suffering from Alzheimer’s disease
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41
Informing patients and their families about trials implemented in France
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42
Making the fight against Alzheimer’s disease a priority for the European Union during the French presidency
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43
Publicizing and promoting research across Europe
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44
Holding a European conference in autumn 2008
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45
Studying opinion and attitude about Alzheimer’s disease and the impact of the plan among patients and carers
Measure 3Version française
Improving health monitoring for family carersTake more account of the family carer’s health in monitoring Alzheimer’s patients.
One consultation per year for each carer upon request.
Enabling 70% of carers for long-term patients (Affection de longue durée, ALD) to benefit from this consultation.
Measures
Including this dimension in the ALD recommendations for Alzheimer’s disease
Identifying this theme in continuing training for doctors
Actions to raise the awareness of carers at the special information point (MAIA - see measure 4)
Lead supervision : Department of Social Security (Direction de la sécurité sociale, DSS) Partners : the National Employees’ Health Insurance Fund (Caisse nationale d’assurance maladie des travailleurs salariés, CNAMTS), the National Health Authority (Haute Autorité de Santé, HAS), doctors’ unions, learned societies, Médéric Alzheimer
Implementation in 2009
Sources of funding: health insurance system
Cost: €5 million per year from 2009, i.e. €20 million over the term of the plan.
Action taken according to the schedule
Research/action comparing the health of carers who have benefited from this follow-up with those who have not.
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