44 measuresVersion française

44 measures in order to fight Alzheimer’s disease and related disorders

Alzheimer’s disease and related disorders progress inexorably as people age : over 85 years old, 1 woman out of 4 and 1 man out of 5 suffer from them. Faced with this major scientifical, medical and social challenge, the President of the French Republic launched on 1rst february 2008 the "plan Alzheimer 2008-2012". Centered on the person with the disease and his or her family helpers, the plan aims at unprecedently developping research, facilitating a timely diagnosis and taking a better care of the person and his or her helpers.

National plan for Alzheimer 2008-2012

• National plan for "Alzheimer and related diseases" 2008-2012 - 1rst feburary 2008 (PDF - 425.6 kb)
• Speech by Nicolas Sarkozy, president of the French Republic, 1rst february 2008 (PDF - 111.4 kb)

• Download the update on the national Plan on Alzheimer and related diseases on its 4th anniversary - 1st february 2012 (PDF - 218.2 kb)
• Foundation Plan Alzheimer : the need for a major concerted action in research in France (PDF - 157.3 kb)

• A short summary of Plan Alzheimer 2008-2012 as of 30 june 2011 (PDF - 159.5 kb)
• Implementation of Plan Alzheimer 2008-2012 30 june 2011 (PDF - 1.8 Mb)

Improving quality of life for patients and carers

Objective 1: Increasing support for carers

• Measure 1: Developing and diversifying respite structures
• Measure 2: Consolidating rights and training for carers
• Measure 3: Improving health monitoring for family carers

Objective 2: Strengthening coordination between all actors involved

• Measure n°4: Quality labelling throughout the country for "single points of contact", the "Maisons pour l’Autonomie et l’Intégration des malades Alzheimer" (MAIA)
• Measure n°5: Establishing "coordinators" throughout the country

Objective 3: Enabling patients and their families to choose support at home

• Measure n°6: Reinforcing support at home, advocating services by trained staff
• Measure n°7: Improving support at home using new technologies

Objective 4: Improving access to diagnosis and care pathways

• Measure n°8: Preparing and implementing a system for giving the diagnosis and providing counselling
• Measure n°9: Experimenting new payment terms for health professionals
• Measure n°10: Creating an Alzheimer’s disease information card for each patient
• Measure n°11: Creating memory units in areas that are not covered
• Measure n°12: Creating "memory resource and research centres" in areas that are not covered
• Measure n°13: Reinforcing the very active memory units
• Measure n°14: Monitoring drug-related iatrogenic accidents
• Measure n°15: Improving correct use of drugs

Objective 5: Improving residential care for better quality of life for Alzheimer’s disease sufferers

• Measure n°16: Creating specific units for patients suffering from behavioural problems within EHPADs
• Measure n°17: Creating specialized units within health care rehabilitation and follow-up (SSR) departments for Alzheimer’s patients
• Measure n°18: Accommodation for young patients
• Measure n°19: Identifying a national reference centre for young Alzheimer’s patients

Objective 6: Recognising skills and developing training for health professionals

• Measure n°20: A specific career and skills development plan for Alzheimer’s disease

Knowledge for action

Objective n°7: Making unprecedented efforts in research

• Measure n°21: Creating a foundation for scientific cooperation to stimulate and coordinate scientific research
• Measure n°22: Developing clinical research of Alzheimer’s disease and improving evaluation of non-drug therapies
• Measure n°23: Doctoral and post-doctoral grants
• Measure n°24: New assistant surgeon and hospital teaching assistant positions
• Measure n°25: Research in human and social sciences
• Measure n°26: Support for research groups working on innovative approaches
• Measure n°27: Support for methodological research groups in human and social sciences
• Measure n°28: Creation of a body of research in automatic image processing
• Measure n°29: Studying large patient populations (cohorts) with long-term monitoring
• Measure n°30: High-speed genotyping
• Measure n°31: Exploiting the genome sequencing of the microcebe
• Measure n°32: Training in clinical epidemiology
• Measure n°33: Developing links between public research and industry

Objective n°8: Organising epidemiological surveillance and follow up

• Measure n°34: Setting up epidemiological surveillance and follow up

Mobilising around a social issue

Objective n°9: Providing information for general public awareness

• Measure n°35: Setting up a telephone helpline and a website for information and local advice
• Measure n°36: Holding regional conferences to support the implementation of the plan
• Measure n°37: Studying disease knowledge and attitudes

Objective n°10: Promoting ethical considerations and an ethical approach

• Measure n°38: Creating a space for ethical thought about Alzheimer’s disease
• Measure n°39: Launching a discussion about the legal status of Alzheimer’s patients in institutions
• Measure n°40: Organising regular meetings focusing on the autonomy of people suffering from Alzheimer’s disease
• Measure n°41: Informing patients and their families about trials implemented in France

Objective n°11: Making Alzheimer’s disease a European priority

• Measure n°42: Making the fight against Alzheimer’s disease a priority for the European Union during the French presidency
• Measure n°43: Publicizing and promoting research across Europe
• Measure n°44: Holding a European conference in autumn 2008

• Measure S1 : Studying opinion and attitude about Alzheimer’s disease and the impact of the plan among patients and carers